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CreatedOn: 21 Mar, 2024
LastUpdatedOn: 15 May, 2024

Palliative Care Unit

About Palliative Care

Palliative care is specialized medical care for people with serious illnesses. It focuses on providing relief from the symptoms and stress of the illness, with the goal of improving quality of life for both the patient and their family. It’s provided by a team of doctors, nurses, and other specialists who work together to address physical, emotional, and spiritual needs. Palliative care can be provided alongside curative treatment and is not limited by prognosis.

 

Goal of Palliative Care 

The primary goal of palliative care is to improve the quality of life for patients facing serious illnesses. This involves managing pain and other distressing symptoms, addressing emotional and spiritual needs, and providing support to patients and their families throughout the illness journey. It’s about enhancing comfort, dignity, and overall well-being, regardless of the prognosis or stage of the illness

 

Importance of Palliative Care 

Palliative care is crucial because it provides holistic support to patients and their families facing serious illnesses. It focuses on improving quality of life by managing symptoms, addressing emotional and spiritual needs, and enhancing overall well-being. Palliative care also helps patients navigate complex medical decisions and provides support during end-of-life care, ensuring comfort and dignity throughout the illness journey. It complements curative treatments and improves patient and family satisfaction with the care received

 

PCU (Palliative Care Unit)

PCU (Palliative Care Unit): is a unit within Prince Faisal Bin Bander Oncology center in which the Palliative Care Physician is the main responsible physician, that specialized in providing service for palliative patients 

 

Assessment

Transfer to palliative care unit

Transfer to palliative care unit:

The patient shall be accepted only if the following conditions apply: 

  1. He/she must be in a “Do Not Resuscitate” (DNR) condition and an DNR Form must be completely filled.
  2. He/she must be known to palliative care, haematology, medical oncology, pediatric hematology/oncology and/or radiation oncology.
  3. He/she must have a clear plan of care from the referring department.
  4.  A detailed and updated (less than one week old) medical report or transfer note must be available in the chart.
  5. He/she and his/her family must understand the DNR, diagnosis, prognosis, treatment options and accept transfer to Palliative Care and a family meeting must have been conducted.
  6. His/her PPS/Kamofsky score must be less than 50% or ECOG more than
  7. He/she must not be currently receiving chemotherapy or having complications that are directly related to chemotherapy such as febrile neutropenia.
  8. No curative treatment must be possible and no further chemotherapy/ targeted therapy/radical radiation treatment must be planned.
  9. His/her life expectancy must be less than 6 months.

Palliative care shall accept transfer of care of a new patient; however the primary team must follow the patient jointly with palliative care for at least two weeks. 

For patients who present in the Emergency room the following shall be applied: 

1. Palliative care shall not accept transfer of care from ER. However, the palliative care team shall accept patient s as consultations from the Oncology/Primary team. 

2. If the patient was transferred previously to Palliative Care, he/she shall be seen by Palliative Care Team. 

3. If the patient is not known to palliative care and other departments of King Fahad Specialist Hospital then he/she shall be seen by the Oncology/Primary Team. Transfer of care shall be considered on the next working day in accordance with other conditions mentioned in this policy.  

4.Consultant Oncologist, Haematologist, Radiation Oncologist or Paediatric Haematologist and Oncologist must indicate the reason for transferring the patient’s care to palliative support. (e.g failure to respond to chemotherapy, patient can’t tolerate chemotherapy etc). 

     4.1 Palliative Care shall not accept any patient referred through the King Fahad Specialist Hospital referral system.

     4.2 Palliative Care shall not accept patient from outside King Fahad Specialist Hospital unless evaluated by Consultant Oncologist, Haematologist, Radiation Oncologist or Pediatric Haematologist and Oncologist.

     4.3 Palliative Care shall not accept transfer of care for patients who are imminently dying. 

 

Management

General management 
  1. Care plan and goals of care are paramount of this standard. A partnership between the PC interdisciplinary team, patient, their family and caregivers is required to enhance:development,adjustment, communication and documentation of plan of care, including setting goals of care and support informed decision making toward the care and advance care planning.
  2. The patient involvement in their care is essential while their disease progresses. Their participation in their care and ability to make decisions is required as applicable.
  3.  When the patient is incapable to make a decision, a legal guardian should be identified ahead of time to work on the best interest of the patient.
  4. Documentation and communication of patient assessment, management, care plans, goals of care, and advance care planning to all healthcare providers involved in the care of the patient is required to ensure best care delivery.

Specific management 
 Managing palliative patients involves a comprehensive approach that addresses their physical, emotional, social, and spiritual needs. This includes:
 
1. Symptom management: Addressing pain, nausea, shortness of breath, and other distressing symptoms through medication, therapy, and other interventions.
2. Emotional support: Providing counseling, support groups, and resources to help patients and their families cope with the emotional challenges of serious illness.
3. Spiritual care: Offering spiritual support and guidance according to the patient’s beliefs and values, which can include pastoral care, rituals, and discussions about meaning and purpose.
4. Advance care planning: Assisting patients in making decisions about their future medical care, including end-of-life preferences, and ensuring these wishes are documented and respected.
5. Coordination of care: Collaborating with other healthcare providers to ensure seamless transitions between different levels of care and services.
6. Family support: Offering support and resources to help family members navigate the challenges of caregiving, grief, and loss.
7. Bereavement support: Providing follow-up care and counseling to family members after the patient’s death to help them cope with grief and adjustment.
 

Overall, the management of palliative patients aims to optimize their quality of life and promote comfort, dignity, and well-being throughout the illness journey.

Request

Requests for palliative patients
  Investigations for palliative care patients aim to provide valuable information to guide symptom management, treatment decisions, and overall care planning while minimizing discomfort and burden on the patient. Common investigations may include:
 
1. Pain assessment: Detailed evaluation of the nature, severity, and impact of pain, often using validated pain assessment tools, to tailor pain management strategies effectively.
2. Symptom assessment: Comprehensive evaluation of other distressing symptoms such as nausea, vomiting, constipation, dyspnea (shortness of breath), and fatigue to identify underlying causes and guide symptom management interventions.
3. Functional assessment: Assessment of the patient’s functional status, including their ability to perform activities of daily living (ADLs), mobility, and cognitive function, to inform care planning and support services.
4. Psychosocial assessment: Evaluation of the patient’s psychological, social, and spiritual well-being, including their coping mechanisms, support network, and existential concerns, to provide appropriate psychosocial support and interventions.
5. Nutritional assessment: Assessment of the patient’s nutritional status, including their weight, dietary intake, and nutritional needs, to optimize nutritional support and address malnutrition or cachexia.
6. Medication review: Review of the patient’s current medication regimen to identify potential drug interactions, adverse effects, and opportunities for optimization or deprescribing, particularly in light of symptom management goals.
7. Advance care planning: Discussion with the patient and their family about their values, preferences, and goals of care, including preferences regarding resuscitation, life-sustaining treatments, and end-of-life care, to document and honor their wishes.
8. Diagnostic imaging: Limited and targeted use of imaging studies such as X-rays, ultrasound, and CT scans to assess specific symptoms or complications, such as evaluating for fractures, bowel obstruction, or metastatic disease, with careful consideration of the potential benefits and burdens.
9. Laboratory tests: Selective use of laboratory tests such as blood tests, urine tests, and tumor markers to assess organ function, electrolyte balance, nutritional status, and disease progression, focusing on tests that are likely to inform clinical management decisions and improve patient outcomes.
10. Prognostic discussions: Open and honest discussions with the patient and their family about the expected course of illness, prognosis, and anticipated changes in symptoms and functional status, to facilitate informed decision-making and advance care planning.
 
Overall, investigations for palliative care patients should be tailored to the individual patient’s needs, preferences, and goals, with a focus on optimizing symptom management, maintaining quality of life, and honoring their values and wishes.

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